Uterine Cancer Survivor

Crystal
P.
Georgia

I was diagnosed with Stage 1c, Grade 3 Endometrial Cancer in May, 2010. Every doctor I have had in my life has made me feel rushed, and made me feel like my questions or concerns were silly... the reason I didn’t go! After moving I was required to have a physical for my new job. Not knowing the area, I opened the phone book and found a family doctor. When I went for my appointment I fell in love with my Doctor. She was SO amazing . She sat with me, did the physical, chatted about life, asked if I had any questions and made me feel like she really cared about me as a person.

In October of 2009, I began noticing increased abnormalities with my cycle. Since the age of 12 when my cycles started, they have NEVER been regular so I really didn’t think very much of it. However, when they began regulating and coming each month, very heavily, I discussed this with my doctor. She felt that it was a good sign that my body was regulating itself and that the heavy flow was most likely due to the fact that I had skipped periods often and frequently and that my body was getting rid of the excess in lining. Makes sense right? She also suggested that we do an exam, however because I was having my period at the time we opted to wait. I honestly didn’t think about it any further until May of 2010. In May, my mother began to notice that I was ALWAYS tired and brought it to my attention. I was also eating ICE like mad! I went in to see my doctor after I realized that I had had my period 3 times in the month of May. I knew then that I something wasn’t right. She took some blood tests and again we discussed the irregular bleeding. She recommended I go in to see a GYN. I went in to see the GYN who did an ultrasound.

The Ultrasound results showed that the lining of my uterus was about 3x thicker than it should be. The Doctor immediately recommended a D&C and Hysteroscopy. There was no reason for my lining to be so thick and he needed more information to figure it all out. A week later I went in for the surgery. It had only been 3 weeks since my first complaint and things were moving SO fast but I wasn’t nervous! I had the D&C and Hysteroscopy on a Thursday and the results came back by my follow-up visit the next Tuesday. As I sat in his office with my mom, he told me the news, that I had endometrial cancer. He was so patient and comforting as he sat there talking with my mom and I for over an hour. He hugged me several times and just kept saying "We are going to take care of you!" His assistant came in the room and they already had me scheduled for a CT scan the next day, and a meeting with the Oncologist for the next week. Of course I cried when I got the diagnosis, but then a great peace washed over me and I knew I was going to be ok!

I went in to see the Oncologist who let me know that the cancer was a Grade 3, the most aggressive type. He recommended a total abdominal hysterectomy. Being a single female, who LOVES kids and has dreamed her whole life of being a mother, this was disheartening. I asked about the possibility of freezing my eggs and he recommended "the BEST" reproductive specialist in the area who has a big interest in working with cancer patients. My hysterectomy was scheduled for August 20, 2010 so we had a little time! I went through once cycle of IVF treatments to stimulate my ovaries and then had my eggs harvested and frozen. A few weeks after that procedure I had my Hysterectomy.

At my follow-up visit, I was told that my cancer had been contained within the uterus and that it had not spread.  They did recommend that I receive radiation treatments to reduce the risk of regrowth, but I am CANCER FREE!!!! My life has been a WHIRLWIND since the diagnosis and it is just now starting to sink in. 

I heard about Fran’s story and found my way here! I hope that through this movement there will be as much awareness about the gynecological cancers as there is for Breast Cancer. Support and awareness is greatly needed for these cancers! Thank you Fran!

I agree

Comments

Wow how do you do it so positive. My story is very similar to yours but I had chemo and radiation. Did not need to freeze eggs cause I am 52. Have 4 kids. Wish you all the best afire your positive attitude wish I could get to there.

Just wanted to update my story! I completed my radiation treatments in November 2010. It is Now May 2011 and I just found out that the cancer has returned as several masses in my abdomen. Looking to Chemo treatments now but have been seriously frustruated at how LITTLE information there is out there on the internet about Endometrial cancer and even less about Endometrial Cancer recurrances! More information is needed for patients like me! Looking to do my part, Just like Fran!

Best of luck to you. Hope one day you put those frozen eggs to good use and have the children that you want!

Your story has me in tears because I'm a little scared because I'm 29 years old with 3 children and after having my 3rd child prematurely emergency c-section (due to previa) almost 10 months ago I started having abnormal periods which started December 28th and ended Jan. 28th, after a couple weeks ago the heavy bleeding return, but it was ongoing, after in and out trips to emergency room and my obgyn doctor they started to run tests and started me on provera 10mg tablets to stop the bleeding but I still had bleeding as I was taking it so I ended back in the emergency room and the er doctor did a pelvic exam and told me the bleeding was coming from my cervix which didn't make any sense because my obgyn doctor said at my follow up appt. that she didn't know why the er doctor told me that. My ultrasound results showed I had a 23.7 mm abnormal uterine lining thickness and they diagnose me with PCOS,that continue do lab work which showed normal hormone levels, but my body is telling me it's a possibility I could have cancer because I did have ct scan in march which showed I had a 1cm lymph node in my pelvic which can possibly be inflammatory. Next week I have to go for a pap smear and a repeat ultrasound to see if my uterine lining has shed. I'm waiting to here the results of all this because I'm still bleeding abnormally. The doctor's think just because I'm young that it can't be cancer or comparing my problem to other woman. Always listen to your body.