Endometrial Cancer Survivor

Hi all. I am a 58 year old mom of one grown son. In late August of 2010 after 2 years of NO periods, I started to have slight spotting after using the restroom. I immediately called my family doctor and went in to see her 3 days after noticing the spotting. She ordered a transvaginal ultrasound that following Monday. One week later she called to tell me something showed up on the ultrasound and she wanted me to see a ob/gyn she was referring me to. On Sept. 8th, 2010 I had my first visit with that ob/gyn. After reviewing my test results from the ultrasound he recommended we do a D&C with hysterscope for Sept. 15th. That was fine with me, i just wanted to find out what was wrong.
On Sept. 22nd the gyn called with the pathology report asking that my husband and I come to his office. When we arrived, he sat us down and said, "im sorry sara, but you need a hysterectomy and I am referring you to a gyn/oncologist as soon as you can get in. I was so scared and frightened after he said the word oncologist, my husband had to take care of the rest of the information. He called the university hospital as soon as we got home, and our consultation was set for Sept. 27th. My oncologist and his staff were absolutely wonderful to me. He reviewed my pathology slides my reg. gyn sent him along with all the other test results. He explained the Davinci Robotic assisted hysterectomy and said i was a good candidate for it. At that point, i just wanted it done as soon as possible. His oncology nurse said.."he has an opening this friday Oct. 1st early morning, or not again until October 14th"......without hesitation I said...."lets do it this friday"!!
So at 11am, Friday October 1st i was wheeled into surgery that lasted 4 and a half hours. Everything was taken, including my pelvic lymph nodes with an abdominal washing. I left the hospital early Sunday morning, with an appointment to see my doctor in 2 weeks. Well, one week exactly from the day of my surgery, Oct. 8th, my oncologist called me at home to tell me my pathology report had come back, and his davinci team had just had their weekly tumor conference to discuss my case.
He told me "sara, it was stage 1A, grade 1 and the entire team feels no further treatment is necessary, the surgery was your treatment"! After that sentance, i heard nothing more and handed the phone to my mother who was staying with me. I now am on a every 3 month check up schedule for the next 2 years. If all is clear, i go to every 6 months of check ups for 2 years. If I make it to 5 years with no recurrence, i can then go back to once a year pap and pelvic! My first check up was Tues. Feb. 1st....and the "what ifs" are rearing their ugly head to me. I just want to get thru this first check up....and take it day at a time. My best to all of you who have endured this diagnosis and are continuing the good fight. May God bless us all!!







Comments
thanx for the encouragement
I'm really glad that you shared ur story. I'm 51 and was diagnosed in June of 2011. My husband, 26 year old son and just had her 21st birthday on August 27th daughter are devastated. Needless to say how glad I was to be here for her bd. Now I pray I get to see her graduate from college in the next year and a half. And I'm bombarded with daily what ifs. Thanx for just sharing and letting me share a little. Never gonna give up. Brigida
Your story could be mine!!!!
Your story could be mine!!!! Right down to the surgery in October!
I am home recovering after two weeks of my surgery. I go to the oncologist in a couple of weeks hoping to hear the same results you had! I MAY need radiation, but that's what he will let me know then.
Thanks so much for you story! I felt like I was writing it!
Many Blessings and best of luck with your future check ups!
Early detection is the key for sure for this disease!!!!!
Best,
Carol
Pretty much my story
I am 70 yrs old and have had no periods for a very long time. One morning I woke to find myself bleeding, not spotting, bleeding. After I cleaned up I headed for my computer to look up postmenopausal blood. Bam. Uterine cancer. Finally, after two days of bleeding I worked up my courage to email my OB/GYN I had just seen two weeks before for my annual Pap. His nurse called and scheduled me for the next day. He did a biopsy a lot like a mini-D&C. He called 3 days later to tell me the pathologist said I had hyperplasia and a few cancer cells. I was referred to a GYN surgeon. I was very impatient and had to wait 10 days for that appointment (partly because I wanted to go to visit my daughter as planned for a few days). He explained that I would have a da Vinci hysterectomy which in my mind meant it would be like the appendectomy and gall bladder operations I had had with laparoscopic surgery: chop up the offending organ and suck it out. NOooo. Too big. So it is a vaginal hysterectomy coupled with probing around, etc with the da Vinci robotic machine. I was told that if the cancer were entirely confined to the uterus I would not have to have my lymph nodes pulled.
End result was that I had a very small tumor (1/4 inch by 1 mm) entirely contained in my uterus. He took ovaries, cervix, etc, total clean out. I can't say I miss any of what my daughters call my girl parts. I think my bladder must have more room to expand as I can go longer at night without having to go to the bathroom. Happy day.
I am now 3 1/2 wks from surgery and healed right up quickly. Stage 1A. No chemo or radiation. Three days after, I ran a lunch meeting for 50 women and attended!
However, I am truly enraged that so little money is spent on a cancer that can be caught early if only a biopsy were done at the same time as the Pap. I would also like to see more genetic work done (I come from a cancer family on one side) and more work on the estrogen link to uterine cancer. I am thinking that if postmenopausal women had a progestin pill series every so often - time to be determined - to clear out the lining created by estrogen in fat cells, some from ovaries, etc over time, the cancer could be PREVENTED. Isn't that the goal?
Scared
I'm just at the beginning of this journey. I had bleeding this past Saturday. Went to the Dr. yesterday. I have an ultrasound next Wednesday. I'm so scared.
Thank you all for you stories....